Migraineurs, how do you manage your attacks

[Orgorgrog]

My migraine started manifesting around the time puberty hit me hard. Mine is the hemiplegic variety accompanied by aura and I am on Zolmitriptan and Sodium Valproate.

Will fellow migraineurs care to share how you manage your symptoms? Also appreciate if anyone who is on Erenumab (Aimovig) injections can share how effective it is for you as I am considering it. Thanks!

P.S.
My apologies if the following items below offends anybody, but as I am looking for practical advice on managing my symptoms from those who have dealt with the condition longer, I need to narrow down the advice and would appreciate if responses come from actual diagnosed migraineurs. For those who think they have migraine, before you response, please kindly be aware:

1. A headache, however severe, is NOT a migraine even if it is recurrent. Headaches are just one of the many symptoms of migraine and some migraine sufferers do not even get headaches during an attack. However, it is still best to have it checked as it can signal some other serious condition (e.g. brain tumour, aneurysm, etc)

2. Only a neurologist can confirm a migraine diagnosis. i.e. you will probably be on long term follow up with a neurologist or be given long term prescription medication for the condition if you actually have migraine.

3. If common painkillers work (including slightly more potent stuff like Tramadol) for your headache, you are *probably* not having a migraine. Migraine has a very specific list of medications and many of those are not used in the treatment of any other conditions.

4. Hormonal headaches - i.e. those which come usually at "that time" of the month, are not migraines. At least not any more based on the newer diagnostic criteria.

5. Full blown attacks of certain types of migraine can land the migraineur in NICU - migraine by itself does not kill but it can trigger certain other life threatening conditions.

Thank you!

 

[nyl3v3]

My migraine started manifesting around the time puberty hit me hard. Mine is the hemiplegic variety accompanied by aura and I am on Zolmitriptan and Sodium Valproate.

Will fellow migraineurs care to share how you manage your symptoms? Also appreciate if anyone who is on Erenumab (Aimovig) injections can share how effective it is for you as I am considering it. Thanks!

P.S.
My apologies if the following items below offends anybody, but as I am looking for practical advice on managing my symptoms from those who have dealt with the condition longer, I need to narrow down the advice and would appreciate if responses come from actual diagnosed migraineurs. For those who think they have migraine, before you response, please kindly be aware:

1. A headache, however severe, is NOT a migraine even if it is recurrent. Headaches are just one of the many symptoms of migraine and some migraine sufferers do not even get headaches during an attack. However, it is still best to have it checked as it can signal some other serious condition (e.g. brain tumour, aneurysm, etc)

2. Only a neurologist can confirm a migraine diagnosis. i.e. you will probably be on long term follow up with a neurologist or be given long term prescription medication for the condition if you actually have migraine.

3. If common painkillers work (including slightly more potent stuff like Tramadol) for your headache, you are *probably* not having a migraine. Migraine has a very specific list of medications and many of those are not used in the treatment of any other conditions.

4. Hormonal headaches - i.e. those which come usually at "that time" of the month, are not migraines. At least not any more based on the newer diagnostic criteria.

5. Full blown attacks of certain types of migraine can land the migraineur in NICU - migraine by itself does not kill but it can trigger certain other life threatening conditions.

Thank you!

Had my very first migraine episode last year around this period of time. I’m quite sure it was a migraine because it’s so debilitating that I couldn’t do anything but just faster take leave and leave my workplace for home straight. And yes, it came so suddenly and vomit like nobody business and after which, the light sensitivity came along.

I believe a lot of ppl mistook cluster headaches, tension headaches etc as migraines. I have colleagues claiming that they have migraine attacks but still able to function at work. If not for my Husband (who have frequent migraine attacks since teenage years too, I also won’t know I had my very first one last year.

According to my Husband and also my doctor, you gotta identify your triggers and prevent it from happening. For my case, I have yet to find out what triggers mine. My Husband’s case, lack of sleep for weeks and hot temperatures. We are both quite lucky that our work nature allow us to leave workplace for home almost immediately to rest. Other than that, we don’t think there’s any other way out.

 

[twinbaby]

I went to neurologist.
The doctor prescribe me Amitriptyline, Anarex and Riboflavine - 60mg.
Anarex is mainly for headache, and if it helps. I don't have to take Amitriptyline. For Riboflavine, I supposed a form of supplement that helps with long term migraine.

For my migraine trigger:

• Busy Work
• Using the Cell Phone too much
• Not getting enough sleep

 

[twinbaby]

I went to neurologist.
The doctor prescribe me Amitriptyline, Anarex and Riboflavine - 60mg.
Anarex is mainly for headache, and if it helps. I don't have to take Amitriptyline. For Riboflavine, I supposed a form of supplement that helps with long term migraine.

For my migraine trigger:

• Busy Work
• Using the Cell Phone too much
• Not getting enough sleep

I wasnt able to sleep for a period of 4 hours ytd. when I work up. I got bad cough

 

[Towkaytay87]

Drink red bull and Coke when attack comes....I am a cluster headache sufferer and I downed the drink when I have an attack without zomig

 

[twinbaby]

i just inject myself with aimovig, the needle is very thin, not painful at all. will update this thread about the side effect and if there is any reduction in migraine days.

 

[unabomber]

• Arcoxia 120mg
• galcanezumab
• fremanezumab
• chamomile tea

For a 1/10 to 5/10 pain I just use chamomile tea now. When the pain is 5/10 to 7/10 I use 60mg Arcoxia. When pain is above 7/10 I use 120mg Arcoxia. Then alternating months I use galcanezumab and fremanezumab

I tried aimovig, it is not that great for my type of headaches. But some people have other results.

Keep a headache diary. It is easier to track with a diary to check if the medicine is working.

 

[twinbaby]

• Arcoxia 120mg
• galcanezumab
• fremanezumab
• chamomile tea

For a 1/10 to 5/10 pain I just use chamomile tea now. When the pain is 5/10 to 7/10 I use 60mg Arcoxia. When pain is above 7/10 I use 120mg Arcoxia. Then alternating months I use galcanezumab and fremanezumab

I tried aimovig, it is not that great for my type of headaches. But some people have other results.

Keep a headache diary. It is easier to track with a diary to check if the medicine is working.

2,3 is very expensive drug, are you covered by insurance or discount coupon?

 

[twinbaby]

how do people deal with headache.
when they see the computer screen at 11pm the day before.
The following morning wake up very early in the day time with a headache like 5am. Just happened to me.

 

[twinbaby]

yesterday got insomnia, woke up at 12am. managed to fall asleep at 430am.

 

[RyanJ]

Check with your neurologist if you are eligible for Botox to control your migraine.

https://www.health.harvard.edu/blog...e-frequency-of-chronic-migraine-2019091817772

 

[twinbaby]

yesterday was the second dose of my aimovig, no longer as scare when I insert the needle on my tummy like the first time, the needle is like accupunture needle only. brain feel alot more clear headed when I work up. but the drug seriously not cheap, 575 USD for a one month dose, so need to have insurance or doctor give you free dose. no side effect like constipation and muscle cramp for me.

 

[twinbaby]

2nd day, no side effect.

 

[twinbaby]

3rd day no side effect

 

[twinbaby]

4th day no side effect

 

[twinbaby]

I take arcoxia when there is a throbbing pain, I find that it works quite well.
I don't take the full 90mg, I take only a quarter to get back to sleep.

 

[napoleon bohlumpar]

My migraine started manifesting around the time puberty hit me hard. Mine is the hemiplegic variety accompanied by aura and I am on Zolmitriptan and Sodium Valproate.

Will fellow migraineurs care to share how you manage your symptoms? Also appreciate if anyone who is on Erenumab (Aimovig) injections can share how effective it is for you as I am considering it. Thanks!

P.S.
My apologies if the following items below offends anybody, but as I am looking for practical advice on managing my symptoms from those who have dealt with the condition longer, I need to narrow down the advice and would appreciate if responses come from actual diagnosed migraineurs. For those who think they have migraine, before you response, please kindly be aware:

1. A headache, however severe, is NOT a migraine even if it is recurrent. Headaches are just one of the many symptoms of migraine and some migraine sufferers do not even get headaches during an attack. However, it is still best to have it checked as it can signal some other serious condition (e.g. brain tumour, aneurysm, etc)

2. Only a neurologist can confirm a migraine diagnosis. i.e. you will probably be on long term follow up with a neurologist or be given long term prescription medication for the condition if you actually have migraine.

3. If common painkillers work (including slightly more potent stuff like Tramadol) for your headache, you are *probably* not having a migraine. Migraine has a very specific list of medications and many of those are not used in the treatment of any other conditions.

4. Hormonal headaches - i.e. those which come usually at "that time" of the month, are not migraines. At least not any more based on the newer diagnostic criteria.

5. Full blown attacks of certain types of migraine can land the migraineur in NICU - migraine by itself does not kill but it can trigger certain other life threatening conditions.

Thank you!

been having migraines since 14yo.................the usual nausea and numbness and throbbing, pounding pain on left side of head...............the thing that bothered me the most was the spotted vision.............

a friend told me it'll be suicidal and homicidal if i ever learn to drive................the vision problems will come without any warning ................

used to take Cafergot and Synflex with success then got allergic to Synflex................lucky thing 2 normal Panadol pills work too...................i also take cold coffee to make migraine go away quicker.............

 

[twinbaby]

been having migraines since 14yo.................the usual nausea and numbness and throbbing, pounding pain on left side of head...............the thing that bothered me the most was the spotted vision.............

a friend told me it'll be suicidal and homicidal if i ever learn to drive................the vision problems will come without any warning ................

used to take Cafergot and Synflex with success then got allergic to Synflex................lucky thing 2 normal Panadol pills work too...................i also take cold coffee to make migraine go away quicker.............

Looks like you need to see a specialist.

 

[napoleon bohlumpar]

Looks like you need to see a specialist.

can't help also lah....................

 

[twinbaby]

can't help also lah....................

I am on a monthly injection. Aimovig 140mg Without insurance 1100 per shot . You decide. Without the need for medication